Doctors may share genetic information to help patients’ relatives

October 1st, 2009

News from BMJ 2009;339:b4031 October 1, 2009 :

“Clinical geneticists and medical ethicists have welcomed guidance from the General Medical Council that says that doctors may share confidential genetic information to protect a patient’s relatives, even if the patient objects.”

Link to the General Medical Council guide:
www.gmc-uk.org/news/docs/Confidentiality_FINAL.pdf
.

New books at the Blaxter Medical Library

August 5th, 2009

The following books have arrived at CHP’s Blaxter Medical Library and are available for checkout:

The Penn Center guide to bioethics / Vardit Ravitsky, Autumn Fiester, and Arthur L. Caplan [editors]. New York : Springer,c2009.  QH332.P4. 2009. (Google Books link to Table of Contents and more)

In the face of death : professionals who care for the dying and the bereaved / Danai Papadatou. New York : Springer Pub., c2009. R726.8.P35.2009. (Google Books link to Table of Contents and more)

When professionals weep: emotional and countertransference responses in end-of-life care / Renee S. Katz, Therese A. Johnson. New York : Routledge, c2006. R276.8.W49 2006. (Google Books link to Table of Contents and more)

A physician-directed intervention: teaching and measuring better informed consent

August 3rd, 2009

Yap TY, Yamokoski A, Noll R, Drotar D, Zyzanski S, Kodish ED; Multi-site Intervention Study to Improve Consent Research Team.
Acad Med
. 2009 Aug;84(8):1036-42.
PMID: 19638769

“PURPOSE: To improve physician communication with parents using a physician-directed intervention (PDI), emphasizing a sequenced approach to the informed consent conference (ICC) for childhood…”

Policies on donation after cardiac death at children’s hospitals: a mixed-methods analysis of variation

May 14th, 2009

On behalf of Dr. Orenstein:

Steve Docimo spotted this article in JAMA on DCD in Children’s Hospitals (we participated).

Antommaria AH, Trotochaud K, Kinlaw K, Hopkins PN, Frader J.
PMID: 19436017

“CONTEXT: Although authoritative bodies have promulgated guidelines for donation after cardiac death (DCD) and the Joint Commission requires hospitals to address DCD, little is known about actual hospital policies…”

pandemic.bioethics.net

May 5th, 2009

From Karen Anderson…

The following was received from Glenn McGee PhD, Editor-in-Chief of The American Journal of Bioethics:

“The American Journal of Bioethics has created, in coordination with FACEBOOK, and with the coordination and inspiration of Dr. Summer Johnson and Dr. Matthew Wynia, a comprehensive website concerning not only the current concerns for bioethicists about pandemic influenze and all the associated issues, but the concerns for society at large that arise in the context of outbreaks of infectious disease. Taylor & Francis, publishers of AJOB, have made available more than two dozen Target Articles and commentaries, including the award winning article on Pandemics by Heidi Malm, the most cited article in all the social sciences during Spring 2009.  In addition there are direct links to search and research assistance facilities and numerous opportunies for community networking.  Please join the community by visiting http://pandemic.bioethics.net which will redirect you to the FACEBOOK page. You will find, there, a collection of hundreds of colleagues in bioethics and all the associated disciplines, some of whom are already members of this site (which has been online for four hours).  If you have any suggestions, there will be an online forum at 7PM tonight EDT at the site, and we welcome the opportunity to talk with you  at that time.”

Communicating with children and families: from everyday interactions to skill in conveying distressing information

April 6th, 2009

Levetown M; American Academy of Pediatrics Committee on Bioethics.
Pediatrics
. 2008 May;121(5):e1441-60.
PMID:18450887

“Health care communication is a skill that is critical to safe and effective medical practice; it can and must be taught. Communication skill influences patient disclosure, treatment adherence and outcome, adaptation to illness, and bereavement. This article provides a review of the evidence regarding clinical communication in the pediatric setting…”

Virtual Mentor issue on informed consent

February 25th, 2009

http://virtualmentor.ama-assn.org/2008/08/toc-0808.html

Intensive Workshop in Health Care Ethics in Little Rock

February 8th, 2009

Looks like an interesting 2-day workshop,coming up in May:

UAMS Intensive Workshop in Healthcare Ethics
Day One:  The Basics;  Day Two:  Medical Ethics & the Law
May 7 & 8, 2009
Little Rock, AR
Website:  http://www.uams.edu/humanities/brochure.asp

The Year in Bioethics: the Highs and Lows of 2008

February 3rd, 2009
by Susan Gilbert

It’s a tradition at The Hastings Center for staff to gather for lunch around the sturdy dining room table in the antique Hudson River mansion and former private school that is our headquarters. Attendance varies, but earlier this month everyone turned out to discuss the biggest news in bioethics over the past year – the highs and lows, the winners and sinners…”

From Bioethics Forum at www.thehastingscenter.org

Of Policy and Pancakes

February 3rd, 2009

by Nancy Berlinger

Pediatric palliative care is a tough subject. We like the idea of making sure that someone is paying attention to the suffering of very sick kids. We hate the idea that anyone has to do this, that any child would endure life-threatening disease or chronic, progressive conditions so early in life…”

Note: From Bioethics Forum at www.thehastingscenter.org


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